Usher syndrome
It is a rare genetic disease that is one of the leading causes of deafblindness and it has three variants. It is characterized by the combination of deafness or hearing impairment and gradual loss of vision, which can also be accompanied by problems of balance. The visual impairment is due to a condition called retinitis pigmentosa, which is a progressive degeneration of the retina and its ability to send images to the brain. Retinitis pigmentosa is manifested initially with night blindness and tunnel vision. In the terminal phase you may also occur the loss of central vision.

Dario Sorgato
He is the founder of NoisyVsion. Born in Padua in 1978. He graduated in Design at the Politecnico di Milano. He currently lives in Berlin.
Diagnosed with Usher Syndrome at the age of 16, Dario has a huge interest in travelling. He lives of adventures and seeks to address all the challenges that life reserves in a positive light.
He spent a year in Australia and New Zealand and when he returned from that trip he published “One year in eight hours“. He walked the Camino de Santiago, and this experience inspired the book “Slow Time“.
He traveled on a ferrocement vessel for nearly two years from Cape Town to Havana, sailing across the Atlantic Ocean and along the coasts of Brazil and the Caribbean islands.
Later he published ‘WATER. A voyage‘ .
His recent trips to Nepal and Peru have taken him to more than 5000 meters altitude, at the Everest Base Camp and at the feet of Mount Salkantay, on the Inca way to Machu Picchu.

NoisyVision
A Non Profit Organization that aims to spread the knowledge of the Usher syndrome and sensory disabilities , to raise awareness about the limits that these conditions involve in everyday life, but also to suggest the most effective strategies to overcome them, transforming them into a potential.
“We do not perceive with the eyes, ears or nose: we perceive with the mind and with the heart.”
Noisyvision’s mission is building a network of people who want to share their skills, resources, stories and experiences to improve the life of people with visual and/or hearing impairments, and to let others better understand them.

Completed projects
The Visionary Europe (2013). A workshop organized under the Lifelong Learning Programme of the European Commission.
#YellowTheWorld (2014). An awareness campaign initiated by NoisyVision, in order to promote the mobility of the visually impaired. Place and year of birth: Helsinki 2014
#YellowTheWorld, Everest Edition (2015). Dario Sorgato reached Everest Base Camp in order to flood the world with yellow starting from its highest point.
The gods like it yellow (2016) An adventure for the Visually Impaired. A walk in the nature along the Way of the Gods, an ancient road used by the Etruscans, Romans and even during the Middle Ages, which connects Bologna to Florence. 7 walking days for a group of visually or hearing impaired and other people without sensory limitations. A mutual exchange of support and different ways of perceiving.
Blind Images. Photographers without sight. Polytechnic University of Milan meets Usher Syndrome (2017). Three stories, three people, three cities for a common denominator: Usher Syndrome. Telling it and photographing it can become art and poetry.
#YellowReykjavik (2017).  NoisyVision, in collaboration with Blindrafelagid, an organization for visually impaired Icelanders, organized and conducted a workshop in Reykjavik, at the end of June 2017. A group of boys and girls from the different countries of Scandinavia gathered in the Icelandic capital to explore the themes of visual accessibility of external and internal urban environments.
#vEyes4YellowTheWorld (2017). A visually impaired and blind person towards the central craters of the Etna volcano.
La Goccia di San Michele per #YellowTheWorld (2017). Non-competitive town march to support the awareness campaign promoted by NoisyVision.
#YellowTheWorld – An inclusive tandem ride (2018)
In Montagna Siamo Tutti Uguali (2018)  In May and September, in collaboration with Appennino Slow, NoisyVision has revived the trek along the Via degli Dei.
Il Cuore Giallo dei Bambini (2018). Meetings with elementary and high school children
Notte Gialla Rock, Modena (2018) .NoisyVision participates in the great Modena event in memory of the 2017 Vasco Rossi concert, with an all-yellow flashmob.
#Victor4RP. Marathon for Retinits Pigmentosa (2018). In conjunction with Victor’s training for the Munich Marathon on October 14th, NoisyVision promoted a fundraiser online to support research for Retinitis Pigmentosa.
Un weekend ad occhi chiusi, da Roppolo a Pratolino. (2018). Sensory walks for sighted and visually impaired, to discover nature with other eyes.
In Berlino with la Girobussola (2018). The collaboration with La Girobussola  for the first trip organized together.
Communicating Usher Syndrome: NoisyVision and vEyes meet Scuola Holden (2018)
Touch Berlin.  A tour with a blind (2019). Airbnb Social Impact Experience to support NoisyVision
Even the donkeys like yellow (2019). 70 kilometers in 4 days along the transhumance way with donkeys, from the Pisan countryside, through the hills, to the sea. A journey on foot, accessible and inclusive for blind, visually impaired, sghted people.
Passi Gialli (Yellow Steps) (2019). Starting from the great love for nature, from the experiences of NoisyVision, Nadia Luppi, visually impaired and expert in inclusion of visual impairment, and Cristina Mori, ecopsychologist and environmental guide hiker of the Centofiori Farm, have prepared three walking itineraries to be enjoyed in company and with all the sensory channels opened.
Festival Sportivamente “Beyond the barriers, together we can” “Stronger than the dark” (2019). NoisyVision is a partner in the organization and realization of this inclusive sport festival born in Sassuolo (MO) and aimed at citizens with particular attention to schools and sports clubs in the area that deal with sport and disability, which promotes sport as a means of well-being and the social inclusion of people with disabilities and as a way to discover that “Beyond the Barriers … Together we can!”. In particular, Run 5.30 “YellowEdition” is dedicated to #YellowtheWorld.
The Way of Oropa, with other eyes (2019). Organized by the Cade del Movimento Lento, this path is part of the initiatives of an accessible path in the name of #YellowtheWorld
In the Mountains We Are All Equal III and IV (2019) In May and September in collaboration with the Appennino Slow, NoisyVision has revived the trek along the Via degli Dei.
At school of #YellowTheWorld with the yellow magician (2019) Laboratory on diversity with 200 children of the primary school of Volparo (Padua)
Neptune Likes it Yellow  (2019) #YellowTheWorld goes by sea aboard Adriatica, the boat of Velisti per Caso, from Naples to the Island of Elba.
Equinox of the senses (2019) with NoisyVision the Oasis of Manzolino is a sensory journey.
The Donkeys Like it Yellow II (2019) second edition of the journey from Cascina (PI) to Rosignano (LI) with Pippa and Lulu ‘, two donkeys.
Passi Gialli (Yellow Steps), Bologna edition (2019) after the success of the past spring edition of the project in Modena, they take up the Yellow Steps, the sensory excursions in nature in a new dimension.
I Gialli in Torino (2019) weekend of guided tours and sensory experiences
Knowing and exploring low vision through theatrical narration and sensory experiences (2019). Mallincomic work of I Bartolini Theater and guided tours inside the Palenontoligico Museum of Montevarchi.
YellowTheFuture 2019: second gathering of NoisyVision (2019)