RI USH SIG launches newsletter
Retina International’s Special Interest Group for Usher Syndrome (RI USH SIG) has launched their newsletter to share up-to-date information on Usher Syndrome advances around the world. Read
NEPTUNE LIKES IT YELLOW
#YellowTheWorld goes by sea From August 24th to 31st 2019 aboard Adriatica, the boat of Velisti per Caso, an integrated crew of visually impaired, blind and normal sighted people will sail the Tyrrhenian from Naples to the Island of Elba. Read
How many times have we found ourselves mistaken for impostors or feeling unrecognized in our potential or difficulties? It happens to everyone, but if you are visually impaired, it could happen more often. Read
It is important to create an Usher Syndrome Community because we need to join efforts, resources and ideas and address them in one direction to have a stronger impact. Read
One week ago, on July 13th 2019, At Marriot Downtown Philadelphia, was held the 11th Usher Syndrome Conference organized by Usher Syndrome Coalition. Read
Do you remember the story of Lizzy?
She is the little girl from Ohio with Usher Syndrome that in 2016 was all over the news because she was able to meet Pope Francis, as one of her Bucket List wishes.
Over the last couple of years the Usher Syndrome Society has been collecting portraits and stories of people of all ages living with Usher syndrome. Read
Attendees describe this conference as “life-changing,” an event with a positive atmosphere and a genuine sense of community. At the USH Connections Conference, you connect face-to-face with hundreds of people who “get it”, meet and network with others facing the same challenges, and learn the latest on developing treatments from leading USH researchers. Read
These days, on many websites, there are articles like this one taken from Indipendent.
“‘High likelihood of human civilization coming to end’ by 2050, report finds”
We refer you to the article itself to read the details of the apocalyptic scenario that lies ahead for all of humanity if something is not done within a decade. Read