Transcript of the presentation during USH2020Connections Week, organized by the Usher Syndrome Coalition.
Watche the video presentation here, with caption or ASL. Read
Mi hanno diagnosticato la Sindrome di Usher. Mi sento perduta?
Qualche mese fa ho scoperto di avere la Retinite Pigmentosa, ho problemi di udito dalla nascita. Read
A group of Scout Girls, Girl Scouts Nation’s Capital Troop 1673 decided to initiate a challenge with the name PAINT IT YELLOW, inspired by the NoisyVision #YellowTheWorld campaign. Read
If it is called the Painters’ Path it will be because it is picturesque.
The definitions of “picturesque” are many. Read
The experience of travel should be experienced by everyone, but opportunities to do so are often limited. This is where Travelear comes in, a virtual travel experience using immersive soundscapes of destinations around the world. Read
Retina International Usher Syndrome Special Interest Group
Spring Newsletter – Update on events & news relevant during the COVID-19 pandemic
RI USH SIG
Dominique Sturz (AT), Melissa Chaikof (US), Carol Brill (IRL), Dario Sorgato (IT)
We hope that you are all fine and healthy despite the COVID-19 pandemic. Read
I wish to share this work of art with friends and followers of NoisyVision.
It might seem born from the connection between the themes addressed in the last two Facebook LIVE of Yellow Happy Hour. Read
Original article on AP News
QR-421a showed early and encouraging evidence of activity, with 25% of patients showing a benefit across multiple concordant outcome measures and was well tolerated with no serious adverse events — QR-421a is the second ophthalmology program where clinical activity was predicted by translational models, further validating the platform — COVID-19 pandemic expected to impact timelines for the pipeline — ProQR anticipates its cash runway will fund operations into H2 2022
LEIDEN, Netherlands & CAMBRIDGE, Mass., Read
Being blind means having dinner with a packet of crackers because you have not found someone to accompany you to the grocery store. Read