It is important to create an Usher Syndrome Community because we need to join efforts, resources and ideas and address them in one direction to have a stronger impact. Read
One week ago, on July 13th 2019, At Marriot Downtown Philadelphia, was held the 11th Usher Syndrome Conference organized by Usher Syndrome Coalition. Read
Do you remember the story of Lizzy?
She is the little girl from Ohio with Usher Syndrome that in 2016 was all over the news because she was able to meet Pope Francis, as one of her Bucket List wishes.
Over the last couple of years the Usher Syndrome Society has been collecting portraits and stories of people of all ages living with Usher syndrome. Read
Attendees describe this conference as “life-changing,” an event with a positive atmosphere and a genuine sense of community. At the USH Connections Conference, you connect face-to-face with hundreds of people who “get it”, meet and network with others facing the same challenges, and learn the latest on developing treatments from leading USH researchers. Read
These days, on many websites, there are articles like this one taken from Indipendent.
“‘High likelihood of human civilization coming to end’ by 2050, report finds”
We refer you to the article itself to read the details of the apocalyptic scenario that lies ahead for all of humanity if something is not done within a decade. Read
A few days ago a metal band has dedicate two concerts in support NoisyVision.
They distributed flyers to the people inviting them to make a donation. Read
In our post Apps and devices for blind and visually impaired people we listed several option that can help blind people with mobility and navigation, but we believe that what you will read below is one of the most effective and low cost systems to make information accessible for all. Read
Some weeks ago we started to work es on the organization of this ambitious project which will see a group of blind, visually impaired and normal sighted sail from 24 to 31 August from Naples to the Island of Elba, passing by Ischia, Ponza and the Argentario. Read