The Usher Syndrome Coalition’s mission is to raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness.
Do you remember the story of Lizzy?
She is the little girl from Ohio with Usher Syndrome that in 2016 was all over the news because she was able to meet Pope Francis, as one of her Bucket List wishes.
TREATRUSH (TreatRetUsher) is the name of a European research network, which aims at treating and fighting the blindness caused by Usher syndrome.
Retina Italia Onlus is the National Association for the fight against inherited retinal dystrophies. On of the main purpose is the promotion and development of scientific research for the identification of the causes, treatment and prevention of retinitis pigmentosa, macular degeneration, inherited retinal dystrophies and other diseases that cause low vision and blindness.
BRAILLE WITHOUT BORDERS (BWB) is an international organisation for the blindin developing countries. It was founded in Lhasa, Tibet by Sabriye Tenberken and Paul Kronenberg in 1998.
VSA, the international organization on arts and disability, was founded more than 35 years ago by Ambassador Jean Kennedy Smith to provide arts and education opportunities for people with disabilities and increase access to the arts for all.
The urgent mission of the Foundation Fighting Blindness, Inc. is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.
Founded over 30 years ago, Deafblind International (DbI) is the world association promoting services for deafblind people.
DbI brings together professionals, researchers, families, deafblind people and administrators to raise awareness of deafblindness.
Sense is the leading national charity that supports and campaigns for children and adults who are deafblind. We provide expert advice and information as well as specialist services to deafblind people, their families, carers and the professionals who work with them.