Inspired by putting visually imparied people first, Reader-view creates a new way to search the internet.
Typically when people search the web for content to read, the process consists of two separate tasks: guessing which link is going to be the best one to click, and then reading the articles. Read
Last September 21st, on the occasion of Global Usher Syndrome Awareness Day, we published the video “Usher Syndrome. Game Over” on our social media channels. Read
ProQR is developing a novel investigational drug called QR-421a to treat RP in patients that have USH2 due to a mutation in a specific part of the USH2A gene, called exon 13. Read
Tales in Sombre Tones is an exciting new touring show with the specific aim of opening up art and literature for all. Read
RI USH SIG launches newsletter
Retina International’s Special Interest Group for Usher Syndrome (RI USH SIG) has launched their newsletter to share up-to-date information on Usher Syndrome advances around the world. Read
One week ago, on July 13th 2019, At Marriot Downtown Philadelphia, was held the 11th Usher Syndrome Conference organized by Usher Syndrome Coalition. Read
Do you remember the story of Lizzy?
She is the little girl from Ohio with Usher Syndrome that in 2016 was all over the news because she was able to meet Pope Francis, as one of her Bucket List wishes.
Over the last couple of years the Usher Syndrome Society has been collecting portraits and stories of people of all ages living with Usher syndrome. Read
Attendees describe this conference as “life-changing,” an event with a positive atmosphere and a genuine sense of community. At the USH Connections Conference, you connect face-to-face with hundreds of people who “get it”, meet and network with others facing the same challenges, and learn the latest on developing treatments from leading USH researchers. Read