Usher syndrome
It is a rare genetic disease that is one of the leading causes of deafblindness and it has three variants. It is characterized by the combination of deafness or hearing impairment and gradual loss of vision, which can also be accompanied by problems of balance. The visual impairment is due to a condition called retinitis pigmentosa, which is a progressive degeneration of the retina and its ability to send images to the brain. Retinitis pigmentosa is manifested initially with night blindness and tunnel vision. In the terminal phase you may also occur the loss of central vision.

Dario Sorgato
He is the founder of NoisyVsion. Born in Padua in 1978. He graduated in Design at the Politecnico di Milano. He currently lives in Berlin.
Diagnosed with Usher Syndrome at the age of 16, Dario has a huge interest in travelling. He lives of adventures and seeks to address all the challenges that life reserves in a positive light.
He spent a year in Australia and New Zealand and when he returned from that trip he published “One year in eight hours“. He walked the Camino de Santiago, and this experience inspired the book “Slow Time“.
He traveled on a ferrocement vessel for nearly two years from Cape Town to Havana, sailing across the Atlantic Ocean and along the coasts of Brazil and the Caribbean islands.
Later he published ‘WATER. A voyage‘ .
His recent trips to Nepal and Peru have taken him to more than 5000 meters altitude, at the Everest Base Camp and at the feet of Mount Salkantay, on the Inca way to Machu Picchu.

NoisyVision
A Non Profit Organization that aims to spread the knowledge of the Usher syndrome and sensory disabilities , to raise awareness about the limits that these conditions involve in everyday life, but also to suggest the most effective strategies to overcome them, transforming them into a potential.
“We do not perceive with the eyes, ears or nose: we perceive with the mind and with the heart.”
Noisyvision’s mission is building a network of people who want to share their skills, resources, stories and experiences to improve the life of people with visual and/or hearing impairments, and to let others better understand them.

Completed projects
The Visionary Europe (2013). A workshop organized under the Lifelong Learning Programme of the European Commission.
#YellowTheWorld (2014). An awareness campaign initiated by NoisyVision, in order to promote the mobility of the visually impaired. Place and year of birth: Helsinki 2014
#YellowTheWorld, Everest Edition (2015). Dario Sorgato reached Everest Base Camp in order to flood the world with yellow starting from its highest point.
The gods like it yellow (2016) An adventure for the Visually Impaired. A walk in the nature along the Way of the Gods, an ancient road used by the Etruscans, Romans and even during the Middle Ages, which connects Bologna to Florence. 7 walking days for a group of visually or hearing impaired and other people without sensory limitations. A mutual exchange of support and different ways of perceiving.
Blind Images. Photographers without sight. Polytechnic University of Milan meets Usher Syndrome (2017). Three stories, three people, three cities for a common denominator: Usher Syndrome. Telling it and photographing it can become art and poetry.
#YellowReykjavik (2017).  NoisyVision, in collaboration with Blindrafelagid, an organization for visually impaired Icelanders, organized and conducted a workshop in Reykjavik, at the end of June 2017. A group of boys and girls from the different countries of Scandinavia gathered in the Icelandic capital to explore the themes of visual accessibility of external and internal urban environments.
#vEyes4YellowTheWorld (2017). A visually impaired and blind person towards the central craters of the Etna volcano.
La Goccia di San Michele per #YellowTheWorld (2017). Non-competitive town march to support the awareness campaign promoted by NoisyVision.
#YellowTheWorld – An inclusive tandem ride (2018)
In Montagna Siamo Tutti Uguali (2018)  In May and September, in collaboration with Appennino Slow, NoisyVision has revived the trek along the Via degli Dei.
Il Cuore Giallo dei Bambini (2018). Meetings with elementary and high school children
Notte Gialla Rock, Modena (2018) .NoisyVision participates in the great Modena event in memory of the 2017 Vasco Rossi concert, with an all-yellow flashmob.
#Victor4RP. Marathon for Retinits Pigmentosa (2018). In conjunction with Victor’s training for the Munich Marathon on October 14th, NoisyVision promoted a fundraiser online to support research for Retinitis Pigmentosa.
Un weekend ad occhi chiusi, da Roppolo a Pratolino. (2018). Sensory walks for sighted and visually impaired, to discover nature with other eyes.
In Berlino with la Girobussola (2018). The collaboration with La Girobussola  for the first trip organized together.
Communicating Usher Syndrome: NoisyVision and vEyes meet Scuola Holden (2018)
Touch Berlin.  A tour with a blind (2019). Airbnb Social Impact Experience to support NoisyVision