Usher Syndrome Coalition. The Usher Syndrome Coalition’s mission is to raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness. Read
It is important to create an Usher Syndrome Community because we need to join efforts, resources and ideas and address them in one direction to have a stronger impact. Read
Do you remember the story of Lizzy?
She is the little girl from Ohio with Usher Syndrome that in 2016 was all over the news because she was able to meet Pope Francis, as one of her Bucket List wishes.
It’s Monday, the first Monday of November. The monumental entrance of the Scuola Holden welcomes us majestically under the light rain that accompanies the reawakening of the city of Turin, after a weekend full of cultural and musical initiatives. Read
In 2015, the Usher Syndrome Coalition declared the third Saturday in September as our global “Usher Syndrome Awareness Day.” It was even entered into the Congressional Record! Read
By the time I was 26, in 2010, I had deemed myself as a perpetual non-dater with little to no motivation of ever meeting my soulmate. Read
The TEDxBrescia video is in Italian. You can watch it anywas. Read
At the moment the reportage of the 3YellowTheWorld Tour is only available in Italian. Many images and information are on the Facebook page of Noisyvision Read
This initiative is supported by Retina Italia ONLUS Just a few days before I go.
Whtat? you still have not heard? Read