Here you are desert.
Finally under my feet.
Before my weak eyes.
On my skin.
I was waiting for you. Read
I have ground sickness.
This means I’m not fully back yet.
I’m on land but I still have movement inside. Read
It is a common slogan that one that says to overcome one’s limits.
Man has always done it.
All discoveries, achievements are a consequence of overcoming limits. Read
Source: WileyOnline Library
Virginie G. Peter,Mathieu Quinodoz,Silvia Sadio,Sebastian Held,Márcia Rodrigues,Marta Soares,Ana Berta Sousa,Luisa Coutinho Santos,Markus Damme,Carlo Rivolta
In murine and canine animal models, mutations in the Arylsulfatase G gene (ARSG) cause a particular lysosomal storage disorder characterized by neurological phenotypes. Read Read
The content in this page is take from the Usher Syndrome Coalition website and it is of their property.
We are authorized to reproduce this content on our website)
February 7, 2022: ProQR and the Usher Syndrome Coalition hosted a webinar about the newly announced clinical trials, “Sirius” and “Celeste,” for individuals with Usher syndrome type 2A (USH2A). Read
Having Difficulty Seeing?
25 Tips to Make the Most of Life with Low (or No) Vision
By Tom Van Arman
These tips are from the perspective of a person diagnosed with severe vision loss who has reasonably clear central vision and has difficulty hearing in noisy environments. Read
NoisyVision was born on January 1st 2011 as a blog, with the domain www.noisyvision.com.
It was initially a personal blog of Dario Sorgato, founder of the association, who in that year decided to write his thoughts, emotions , linked to the feelings of Usher Syndrome, which until then kept almost hidden. Read
The first evening we met after dinner chatting in front of the fireplace of the Monte Marca refuge, the last ones left to be pampered by the crackling and warmth of the flames were Giuliana and Vincenzo. Read