Original text here
LEIDEN, Netherlands and CAMBRIDGE, Mass., March 11, 2019 (GLOBE NEWSWIRE) — ProQR Therapeutics N.V. (Nasdaq:PRQR), a company dedicated to changing lives through the creation of transformative RNA medicines for the treatment of severe genetic rare diseases, today announced the first patient dosed in the Phase 1/2 STELLAR clinical trial for QR-421a in patients with Usher syndrome type 2 or non-syndromic retinitis pigmentosa (RP). Read
We are pleased to share with you the video, transcripts, slides and summaries of the 2018 International Symposium on Usher Syndrome in Mainz, Germany. Read
Last week the International Symposium on Usher Syndrome was held in Mainz. It was a 3-day event, we only attended the patient’s symposium as I was afraid that the 2 scientific days would be too complicated to follow anyway (and I would be braindead before the patient program even started…). Read
During the summer of 2017 Stefano Scagliarini contacted NoisyVision to request assistance for his thesis at Politecnico di Milano. We immediately answered, convinced that an external and artistic point of view on Usher syndrome would help to the awareness of the condition. Read
At the moment the reportage of the 3YellowTheWorld Tour is only available in Italian. Many images and information are on the Facebook page of Noisyvision Read
In this post a few months ago we wanted to stretch the importance to participate in the DiseaseMaps project, emphasizing its mission
We connect people who are suffering from different conditions to help them finding things to make their lives better
Today we are proud to annouce we are ambassador for Usher Syndrome on the DiseaseMap
In other words we will give concrete support to the project, helping in the dissemination of the maps, in particular those of the Usher Syndrome and Retinitis Pigmentosa. Read
A year after the #YellowTheWorld expedition to the Everest Base Camp it is time for a new adventure.
Why? Where is it written that you have to go somewhere? Read
There is a beautiful light. A perfectly blue sky. It is eight o’clock in the morning. The streets are almost deserted on this Easter Sunday. Read
Off I go!
All is set.
Heart is big.
Mind is blowing.
#yellowtheworld – Everest Edition starts today.
I am excited like a mouse in a factory of cheese. Read
This initiative is supported by Retina Italia ONLUS Just a few days before I go.
Whtat? you still have not heard? Read