International Symposium on Usher Syndrome 2018

Last week the International Symposium on Usher Syndrome was held in Mainz. It was a 3-day event, we only attended the patient’s symposium as I was afraid that the 2 scientific days would be too complicated to follow anyway (and I would be braindead before the patient program even started…).
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NoisyVision is ambassador for DiseaseMaps

In this post a few months ago we wanted to stretch the importance to participate in the DiseaseMaps project, emphasizing its mission We connect people who are suffering from different conditions to help them finding things to make their lives better Today we are proud to annouce we are ambassador for Usher Syndrome on the DiseaseMap In other words we will give concrete support to the project, helping in the dissemination of the maps, in particular those of the Usher Syndrome and Retinitis Pigmentosa.
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Off I go!

Off I go! All is set. Heart is big. Mind is blowing. ‪#‎yellowtheworld‬ – Everest Edition starts today. I am excited like a mouse in a factory of cheese.
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What is Usher Syndrome?

It is not difficult to find out what is Usher Syndrome. Just type in the name on a search engine and thousands of pages that explain what this disease will be displayed. 
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