When touching is forbidden

When I was 18 years I was diagnosed with Usher Syndrome and it took me another eighteen years to understand which were the consequences of this disease and realize that it is one of the main causes of deaf blindness.
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The Visual Bucket List Foundation

Do you remember the story of Lizzy? She is the little girl from Ohio with Usher Syndrome that in 2016 was all over the news because she was able to meet Pope Francis, as one of her Bucket List wishes.

See Bad, Feel Good. The book by Krister Inde

In June 2018 I had the pleasure of meeting Krister Inde in person. We were in Laško, Slovenia, both invited as speakers at the first low vision conference organized by the European Blind Union, the voice of the blind and partially sighted people in Europe The thing that struck me about Krister is the lightness with which he speaks about visual impairment, not just with words, but with all of himself.
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