STARGARDT… e dintorni.

Donato Di Pierro is the founder and editor of the blog STARGARDT… e dintorni Donato is suffering from a variant of Stargardt disease, juvenile macular degeneration that affects the central part of the retina, the one that has the function to make us see the details.

When touching is forbidden

When I was 18 years I was diagnosed with Usher Syndrome and it took me another eighteen years to understand which were the consequences of this disease and realize that it is one of the main causes of deaf blindness.
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The Visual Bucket List Foundation

Do you remember the story of Lizzy? She is the little girl from Ohio with Usher Syndrome that in 2016 was all over the news because she was able to meet Pope Francis, as one of her Bucket List wishes.