The path of a degenerative disease leading to gradual loss of vision is very difficult.
There are no proven, one-size-fits-all tools to help cope with this deeply individual, lonely and unique situation.
Read Donato Di Pierro is the founder and editor of the blog STARGARDT… e dintorni
Donato is suffering from a variant of Stargardt disease, juvenile macular degeneration that affects the central part of the retina, the one that has the function to make us see the details.
If it is called the Painters’ Path it will be because it is picturesque.
Easy.
The definitions of “picturesque” are many.
Read I wish to share this work of art with friends and followers of NoisyVision.
It might seem born from the connection between the themes addressed in the last two Facebook LIVE of Yellow Happy Hour.
Read When I was 18 years I was diagnosed with Usher Syndrome and it took me another eighteen years to understand which were the consequences of this disease and realize that it is one of the main causes of deaf blindness.
Read Yesterday I decided to try not to read news, articles, numbers.
It is difficult because the situation evolves rapidly and differently depending on the city, region, country in which you are located.
Read Do you remember the story of Lizzy?
She is the little girl from Ohio with Usher Syndrome that in 2016 was all over the news because she was able to meet Pope Francis, as one of her Bucket List wishes.
On the morning of Thursday 2nd May 2019 the Primary School Elena Lucrezia Cornaro Piscopia in Volparo (province of Padua, Italy) was dyed yellow.
Read The dust on the shoes.
I just pass a finger on the hard leather. I should put the cream on to soften it.
Read 