Often when people hear about retinitis pigmentosa or Usher syndrome, they become sad, look down, they put a hand on your shoulder, and often say: “I’m sorry …” as if there was some grief to deal with; two of the psychotherapist I went, when I told them my night misadventures held a look, like when you see a dog without a leg, or a deadpigeon on the street, an abandoned kitten, something like that. This has always annoyed me, because I was put in the comfortable situation of the disabled beyond recovery: I would live forever inside the walls of my parents’ house, always protected, pampered and muffled in a world of cotton and donuts, where the only woman in my life wwould be my mother and my bestfriend, my father.
I have walked the tunnels of drugs and alcohol, I cried until I lost even more eyesight, I have hurted myself on purpose, I hated my body till on my last legs, then I stopped and asked myself: what is a disease? After years of careful considerations I have reached a possible conclusion. I’ve always been a big fan of superheroes: X-Men, Superman, Daredevil was my favorite, etc. .. but what is the power that makes a person special? I was looking for the answer to this question then one day I happened to hear a phrase: With great power comes great responsibility (Spiderman). I wondered if it could even be the opposite: a great responsibility comes with great power? If an Usher became the manager of himself, if he walks, eats, sees and hears in a responsible manner, albeit limited, does he becoms powerful? And how?
Said like this it seems that I am really a mentally unstable, and in some ways I do not deny, but I assure you this but also many other diseases, do not make things more difficult, but easier.
An unofficial report of the Second World War, tells how during the Nazi era and the British Army, the best snipers had the narrow field of view: for this they were infallible.
An Usher sees, scans, tests, dissects and then gently put it back where he found it. So … What’s your superpower?
written by Ruggero Casalini
translated in English by Dario Sorgato