Like an alchemist, Nadia knows how to distill the emotions that the passageway, la Via degli Dei, intended. She has the capacity to write what others only know how to feel and experience. Read
By the time I was 26, in 2010, I had deemed myself as a perpetual non-dater with little to no motivation of ever meeting my soulmate. Read
During the summer of 2017 Stefano Scagliarini contacted NoisyVision to request assistance for his thesis at Politecnico di Milano. We immediately answered, convinced that an external and artistic point of view on Usher syndrome would help to the awareness of the condition. Read
The Italian version of this post explains how to donate the 5X1000 to NoisyVision. This is a way to donate the 0,5% of your taxes to an association or organisation of your choice, at the moment of the tax declaration. Read
He had his glasses on a cute, curious face. He looked at me with a thousand questions blowing in his chest, without knowing which to ask first. Read
Do you really believe they will find a cure for this damn disease (RP)?
This is the question I wrote on a well-known Facebook group that brings together patients with Retinitis Rigmentosa or Usher Syndrome and their family members. Read
A Passport and Poor Vision: Not a Combination that Should Curtail your Travel Adventures
There is absolutely no reason why anyone with a vision impairment should be dissuaded from planning a travel itinerary that fulfills your ambitions to enjoy new experiences. Read
Before last Saturday, the 1st of October, I could have not remembered the last time I had ridden a bike in a big city, as my progressive vision loss has been affecting my mobility over the years. Read
Being visually impaired, in all the possible variants, it is not easy at any age.
Retinitis pigmentosa is an unpredictable disease: it is unpredictable when and how intensively it will manifest, it does not matter if you have just learned to walk or if suddenly you find yourself having to change your world, having to rearrange your professional life and relationships. Read
Talking, talking, talking.
There is the need to talk.
There is the need to share the phases and the moments of this degenerative disease, so maybe it feels less heavy. Read