The path of a degenerative disease leading to gradual loss of vision is very difficult.
There are no proven, one-size-fits-all tools to help cope with this deeply individual, lonely and unique situation.
Read Having Difficulty Seeing?
25 Tips to Make the Most of Life with Low (or No) Vision
By Tom Van Arman
These tips are from the perspective of a person diagnosed with severe vision loss who has reasonably clear central vision and has difficulty hearing in noisy environments.
Read It is a fact that to date there are no cures or therapies for retinitis pigmentosa.
We have collected in this article all the treatments that circulate on the web, but in the same article it reads:
There are no univocal scientific confirmations.
Read At the moment the reportage of the 3YellowTheWorld Tour is only available in Italian. Many images and information are on the Facebook page of Noisyvision
Read Do you really believe they will find a cure for this damn disease (RP)?
This is the question I wrote on a well-known Facebook group that brings together patients with Retinitis Rigmentosa or Usher Syndrome and their family members.
Read In these days I posted the video on youtube Being Dario.
The draft idea came after the dust raised by the icebucketchallenge.
Read Almost all those who are suffering from rare and incurable diseasefeel the need to be in touch with others and find information on research, treatments, therapies and technologies, but in many cases the disease is so rare that it is not easy to meet personally someone with the same physical, psychological and social, conditions to exchange point of views, suggestions and experiences.
Read Writing an article about psychology in relation to disability, and in particular, to Usher syndrome is a challenge not to be underestimated.
Read I state (and repeat) that Noisyvision is not a scientific website and information are based on experience and research of individual editors.
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