RI USH SIG launches newsletter
Retina International’s Special Interest Group for Usher Syndrome (RI USH SIG) has launched their newsletter to share up-to-date information on Usher Syndrome advances around the world. Read
NEPTUNE LIKES IT YELLOW
#YellowTheWorld goes by sea From August 24th to 31st 2019 aboard Adriatica, the boat of Velisti per Caso, an integrated crew of visually impaired, blind and normal sighted people will sail the Tyrrhenian from Naples to the Island of Elba. Read
Due tothe positive result of his previous project on audio description, Cesar returns for his second research project!
NoisyVision contributed to the recruiting of participant in the previous survey, with outstanding results. Read
On the other side there are them, volunteers or professionals. Everyone who works to help people with visual difficulties.
One of these figures is the orientation and mobility specialist. Read
How many times have we found ourselves mistaken for impostors or feeling unrecognized in our potential or difficulties? It happens to everyone, but if you are visually impaired, it could happen more often. Read
It is important to create an Usher Syndrome Community because we need to join efforts, resources and ideas and address them in one direction to have a stronger impact. Read
One week ago, on July 13th 2019, At Marriot Downtown Philadelphia, was held the 11th Usher Syndrome Conference organized by Usher Syndrome Coalition. Read
Do you remember the story of Lizzy?
She is the little girl from Ohio with Usher Syndrome that in 2016 was all over the news because she was able to meet Pope Francis, as one of her Bucket List wishes.
Over the last couple of years the Usher Syndrome Society has been collecting portraits and stories of people of all ages living with Usher syndrome. Read