List updated on 23 April 2019In this post we want to collect all groups for deaf and hearing impaired. They range from support groups, to groups that talk about technology, sports, leisure, recreational activities.
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22 April 2019
Ten tips to guiding a person with sight loss
This list was take from RNIB website
Another interesting post on the topic is here
The advice given here will help you feel confident about guiding a person with sight loss: Always offer assistance first, not everyone will need help
Introduce yourself – ask the person where they want to go and how they wish to be guided
Ensure you are one step ahead of the person you are guiding
Give instructions where necessary but don’t overdo it
Be aware of hazards at ground level and at head height
When guiding, give information about the people who are present and the environment as you move around
Explain your actions
When approaching seating, tell the person where the seat is and guide their hand to the back and seat of the chair, so that they can sit down independently
Remember to allow extra space around obstacles
Remember if someone is blind, it doesn’t always mean they have no sight at all.
Read Updated list: 21st April 2019 – 18:23
Here is the updated list of Facebook groups for the blind and visually impaired.
Read 18 April 2019
Low vision and blindness are the value of the journey together, as two sighted participants say.
Walking presupposes thatat every step the world changes in some aspect and also that something changes in us Italo Calvino – Collection of Sand
It happens … a moment of fatigue, one of the “dark nights of the soul” that we can all meet during our existence.
Read The dust on the shoes.
I just pass a finger on the hard leather. I should put the cream on to soften it.
Read 22 March 2019
ProQR Doses First Patient in Phase 1/2 STELLAR Trial of QR-421a for Usher Syndrome Type 2
Original text here
LEIDEN, Netherlands and CAMBRIDGE, Mass., March 11, 2019 (GLOBE NEWSWIRE) — ProQR Therapeutics N.V. (Nasdaq:PRQR), a company dedicated to changing lives through the creation of transformative RNA medicines for the treatment of severe genetic rare diseases, today announced the first patient dosed in the Phase 1/2 STELLAR clinical trial for QR-421a in patients with Usher syndrome type 2 or non-syndromic retinitis pigmentosa (RP).
Read 21 March 2019
All the cures for Retinitis Pigmentosa
This article aims to collect all the cures for retinitis pigmentosa found on the internet in a single list.
A way to do you a favor and avoid browsing through a myriad of websites.
Read 12 March 2019
Glaucoma: the Silent Thief of Sight
Glaucoma is one of these age-related eye diseases that has no early symptoms, which is why it is called the silent thief of sight.
Read 17 February 2019
Assistance for the disabled: the first or last moment of a trip
(transalted from Italian by Sophia Boccard)
I just got back from an incredible solo trip to Thailand. I have not traveled alone since my trip to Peru in 2016.
Read 25 January 2019
Will my children have Usher Syndrome?
This text is taken from Usher Syndrome Coalition website, where you can find more information about genetics for Usher syndrome
Children receive one copy of each chromosome from their mother (shown in green) and one copy from their father (shown in blue).
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