Usher Syndrome and Facebook. The best and most followed pages to be always updated on Retinitis Pigmentosa and Hearing Loss

Almost all those who are suffering from rare and incurable diseasefeel the need to be in touch with others and find information on research, treatments, therapies and technologies, but in many cases the disease is so rare that it is not easy to meet personally someone with the same physical, psychological and social, conditions to exchange point of views, suggestions and experiences.