Do you really believe they will find a cure for this damn disease (RP)?
This is the question I wrote on a well-known Facebook group that brings together patients with Retinitis Rigmentosa or Usher Syndrome and their family members.
Read Talking, talking, talking.
There is the need to talk.
There is the need to share the phases and the moments of this degenerative disease, so maybe it feels less heavy.
Read Working
Reading
Looking
Going out
Travelling
Listening
What does it mean to be an Usher (Type II)?
You were born normal and believe you are.
Read – Hello Mom, it’s me.
– Hello Dario.
– I met a guy here, at the hostel, he told me that Retinitis Pigmentosa leads to blindness.
Read Sorry, this entry is only available in Italian
Read Sorry, this entry is only available in Italian
Read 