14 April 2018
Run4Usher #corrieimmaginadivolare
This post is only in Italia because the video is in Italian. You can still watch it.
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2 June 2017
As you hope I will continue to live
Do you really believe they will find a cure for this damn disease (RP)?
This is the question I wrote on a well-known Facebook group that brings together patients with Retinitis Rigmentosa or Usher Syndrome and their family members.
Read 6 March 2016
The need to talk, to vent and … to laugh
Talking, talking, talking.
There is the need to talk.
There is the need to share the phases and the moments of this degenerative disease, so maybe it feels less heavy.
Read 5 December 2015
Living with Usher Syndrome
Working
Reading
Looking
Going out
Travelling
Listening
What does it mean to be an Usher (Type II)?
You were born normal and believe you are.
Read 5 December 2015
HELLO!
– Hello Mom, it’s me.
– Hello Dario.
– I met a guy here, at the hostel, he told me that Retinitis Pigmentosa leads to blindness.
Read Sorry, this entry is only available in Italian
Read 19 May 2014
La mia storia di lotta e di vita
Sorry, this entry is only available in Italian
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