Rare Diseases, Zero Discrimnation and Hearing. Three International Days we celebrate.

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These three important celebrations are one after the other and in a way or another they relate to us and what we do.

On February 29th it is Rare Disease Day.

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
There are over 300 million people living with one or more of over 6,000 identified rare diseases around the world, each supported by family, friends and a team of carers that make up the rare disease community.
Each rare disease may only affect a handful of people, scattered around theworld, but taken together the number of people directly affected is equivalent to the population of the world’s third largest country.
Rare diseases currently affect 3.5% – 5.9% of the worldwide population.
72% of rare diseases are genetic whilst others are the result of infections (bacterial or viral), allergies and environmental causes, or are degenerative and proliferative.
70% of those genetic rare diseases start in childhood.
A disease defined as rare in Europe when it affects fewer than 1 in 2,000 people.

Here the events organized worldwide

On Zero Discrimination Day, 1 March, we celebrate the right of everyone to live a full and productive life—and live it with dignity. Zero Discrimination Day highlights how people can become informed about and promote inclusion, compassion, peace and, above all, a movement for change. Zero Discrimination Day is helping to create a global movement of solidarity to end all forms of discrimination.

On Zero Discrimination Day this year, UNAIDS is challenging the discrimination faced by women and girls in all their diversity in order to raise awareness and mobilize action to promote equality and empowerment for women and girls

On March 3rd is World Hearing Day.

On World Hearing Day 2020, WHO will highlight that timely and effective interventions can ensure that people with hearing loss are able to achieve their full potential. It will draw attention to the options available in this respect.

Key messages for World Hearing Day 2020:

  • At all life stages, communication and good hearing health connect us to each other, our communities, and the world.
  • For those who have hearing loss, appropriate and timely interventions can facilitate access to education, employment and communication.
  • Globally, there is lack of access to interventions to address hearing loss, such as hearing aids.
  • Early intervention should be made available through the health systems.

 

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