sindrome di usher

When Should You Tell Your Child That He Or She Has Usher Syndrome?

by Mark Dunning Original article appeared on Usher Syndrome Coalition Website Thanks to genetic testing, we are now able to…

Wednesday January 29th, 2020

Usher Syndrome Organizations in the world

International Usher Syndrome Coalition. The Usher Syndrome Coalition’s mission is to raise awareness and accelerate research for the most common genetic cause of combined…

Monday January 13th, 2020

Usher Syndrome Community

It is important to create an Usher Syndrome Community because we need to join efforts, resources and ideas and address…

Monday July 22nd, 2019

The Visual Bucket List Foundation

https://www.youtube.com/watch?v=IVZbfr_plWk Do you remember the story of Lizzy? She is the little girl from Ohio with Usher Syndrome that in…

Friday July 19th, 2019

Communicating Usher Syndrome: NoisyVision and vEyes meet the Scuola Holden

It's Monday, the first Monday of November. The monumental entrance of the Scuola Holden welcomes us majestically under the light…

Sunday November 18th, 2018

#USHDAY Global Usher Syndrome Awareness Day

In 2015, the Usher Syndrome Coalition declared the third Saturday in September as our global “Usher Syndrome Awareness Day.” It…

Saturday September 15th, 2018

Going blind while falling in love

By the time I was 26, in 2010, I had deemed myself as a perpetual non-dater with little to no…

Wednesday May 9th, 2018

Il colore del possibile | Dario Sorgato | TEDxBrescia

The TEDxBrescia video is in Italian. You can watch it anywas. https://www.youtube.com/watch?v=3ICnjWNhbJg  

Saturday April 14th, 2018

#YellowTheWorld Tour – Reportage

At the moment the reportage of the 3YellowTheWorld Tour is only available in Italian. Many images and information are on…

Monday June 5th, 2017