sindrome di usher

The Role Of Rna Therapies In Usher Syndrome (USH2A Update)

Watch the video presentation with Caption or in ASL here You can also download the script. Presentation Summary: A presentation…

Tuesday October 27th, 2020

The Best Hearing Technology for Usher Syndrome,

Transcript of the presentation during USH2020Connections Week, organized by the Usher Syndrome Coalition. Watche the video presentation here, with caption…

Monday October 19th, 2020

When Should You Tell Your Child That He Or She Has Usher Syndrome?

by Mark Dunning Original article appeared on Usher Syndrome Coalition Website Thanks to genetic testing, we are now able to…

Wednesday January 29th, 2020

Usher Syndrome Organizations in the world

International Usher Syndrome Coalition. The Usher Syndrome Coalition’s mission is to raise awareness and accelerate research for the most common genetic cause of combined…

Monday January 13th, 2020

Usher Syndrome Community

It is important to create an Usher Syndrome Community because we need to join efforts, resources and ideas and address…

Monday July 22nd, 2019

The Visual Bucket List Foundation

https://www.youtube.com/watch?v=IVZbfr_plWk Do you remember the story of Lizzy? She is the little girl from Ohio with Usher Syndrome that in…

Friday July 19th, 2019

Communicating Usher Syndrome: NoisyVision and vEyes meet the Scuola Holden

It's Monday, the first Monday of November. The monumental entrance of the Scuola Holden welcomes us majestically under the light…

Sunday November 18th, 2018

#USHDAY Global Usher Syndrome Awareness Day

In 2015, the Usher Syndrome Coalition declared the third Saturday in September as our global “Usher Syndrome Awareness Day.” It…

Saturday September 15th, 2018

Going blind while falling in love

By the time I was 26, in 2010, I had deemed myself as a perpetual non-dater with little to no…

Wednesday May 9th, 2018