News

When Should You Tell Your Child That He Or She Has Usher Syndrome?

by Mark Dunning Original article appeared on Usher Syndrome Coalition Website Thanks to genetic testing, we are now able to…

Wednesday January 29th, 2020

A cure for Retinitis Pigmentosa: walking in nature

It is a fact that to date there are no cures or therapies for retinitis pigmentosa. We have collected in…

Tuesday January 28th, 2020

Usher Syndrome Organizations in the world

International Usher Syndrome Coalition. The Usher Syndrome Coalition’s mission is to raise awareness and accelerate research for the most common genetic cause of combined…

Monday January 13th, 2020

Life strategies of people with deafblindness due to Usher syndrome type 2a – A qualitative study

In the month of August 2019 a very interesting and important research study on the life strategies of people with…

Wednesday December 11th, 2019

RI USH SIG Winter Newsletter

On December 2nd Retina International sent the RI USH SIG Winter Newsletter We are happy to send you the RI…

Thursday December 5th, 2019

NoisyVision at Accessibility Club Summit 2019

Today Dario Sorgato, founder and chairman of NoisyVision, attended the first of the two days of the Accessibility Club Summit…

Sunday November 17th, 2019

Giggle Reader View: A new way to search the web.

Inspired by putting visually imparied people first, Reader-view creates a new way to search the internet.  Typically when people search…

Thursday October 31st, 2019

Usher Syndrome. Game Over

Last September 21st, on the occasion of Global Usher Syndrome Awareness Day, we published the video "Usher Syndrome. Game Over"…

Thursday October 24th, 2019

QR-421a and the clinical trials on Usher Syndrome Type 2A

ProQR is developing a novel investigational drug called QR-421a to treat RP in patients that have USH2 due to a…

Tuesday October 1st, 2019