News

Giggle Reader View: A new way to search the web.

Inspired by putting visually imparied people first, Reader-view creates a new way to search the internet.  Typically when people search…

Thursday October 31st, 2019

Usher Syndrome. Game Over

Last September 21st, on the occasion of Global Usher Syndrome Awareness Day, we published the video "Usher Syndrome. Game Over"…

Thursday October 24th, 2019

QR-421a and the clinical trials on Usher Syndrome Type 2A

ProQR is developing a novel investigational drug called QR-421a to treat RP in patients that have USH2 due to a…

Tuesday October 1st, 2019

Tales in Sombre Tones: an accessible art show.

Tales in Sombre Tones is an exciting new touring show with the specific aim of opening up art and literature…

Tuesday October 1st, 2019

Retina International Usher Syndrome Special Interest Group (SIG) Newsletter

RI USH SIG launches newsletter Retina International’s Special Interest Group for Usher Syndrome (RI USH SIG) has launched their newsletter…

Tuesday September 17th, 2019

Neptune Likes it Yellow – Press Release

NEPTUNE LIKES IT YELLOW #YellowTheWorld goes by sea From August 24th to 31st 2019 aboard Adriatica, the boat of Velisti…

Tuesday August 20th, 2019

Visual impairment and misunderstanding: the answer is in between

How many times have we found ourselves mistaken for impostors or feeling unrecognized in our potential or difficulties? It happens…

Thursday July 25th, 2019

Usher Syndrome Community

It is important to create an Usher Syndrome Community because we need to join efforts, resources and ideas and address…

Monday July 22nd, 2019

USH2019 Usher Syndrome Connections Conference in Philadelphia

One week ago, on July 13th 2019, At Marriot Downtown Philadelphia, was held the 11th Usher Syndrome Conference organized by…

Sunday July 21st, 2019