Storie e testimonianze

Usher Syndrome worldwide: The best wepages written and/or created by Usher people

When it comes to finding information in general, most people use the internet. Of course, it also applies to search…

Friday July 22nd, 2011

Visually and Hearing impaired: it is expensive!

Some time ago I came across a video where a deafblind lady makes some interesting considerations associated with visual and…

Tuesday July 12th, 2011

When Usher Syndrome is a superpower. The considerations of a superhero with retinitis pigmentosa

Often when people hear about retinitis pigmentosa or Usher syndrome, they become sad, look down, they put a hand on…

Wednesday June 15th, 2011

Dating and Usher syndrome. Implications of visual and hearing impairment

When I was about 23 I began to realize that soon I should put the driving license between the memories…

Monday June 13th, 2011

Usher Syndrome no limits: Bill Barkeley knows how to do it, and you?

I have not managed to meet him personally, but have followed his adventures, read his stories, I looked at his…

Tuesday May 10th, 2011

How to survive the Usher Syndrome. Ruggero has five suggestions

In the article How much does who has retinitis pigmentosa see ? What does he/she see? one of our reader…

Friday May 6th, 2011

I am not deaf. I am hearing impaired. What I hear and what I don’t.

In a previous article we discussed the difference between being blind and being visually impaired. For the ‘lucky‘ people with…

Tuesday May 3rd, 2011

I have a rare disease. Luck is blind, but me too

To understand how rare Usher Syndrome is, we try to compare some data. (Unfortunately, no data are verified and confirmed.

Thursday April 28th, 2011

Who was Helen Keller? An extraordinary example of revenge on deafblindness

Helen Adams Keller was an American writer, activist and teacher, deaf-blind since the age of 19 months. Her story and…

Monday April 18th, 2011