Usher Syndrome

RI USH SIG – Spring Newsletter

Retina International Usher Syndrome Special Interest Group Spring Newsletter - Update on events & news relevant during the COVID-19 pandemic…

Wednesday May 13th, 2020

QR-421a: Showing Benefits on One out of Four Usher Syndrome patients

Original article on AP News QR-421a showed early and encouraging evidence of activity, with 25% of patients showing a benefit…

Thursday April 2nd, 2020

Life strategies of people with deafblindness due to Usher syndrome type 2a – A qualitative study

In the month of August 2019 a very interesting and important research study on the life strategies of people with…

Wednesday December 11th, 2019

RI USH SIG Winter Newsletter

On December 2nd Retina International sent the RI USH SIG Winter Newsletter We are happy to send you the RI…

Thursday December 5th, 2019

Usher Syndrome. Game Over

Last September 21st, on the occasion of Global Usher Syndrome Awareness Day, we published the video "Usher Syndrome. Game Over"…

Thursday October 24th, 2019

QR-421a and the clinical trials on Usher Syndrome Type 2A

ProQR is developing a novel investigational drug called QR-421a to treat RP in patients that have USH2 due to a…

Tuesday October 1st, 2019

USH2019 Usher Syndrome Connections Conference in Philadelphia

One week ago, on July 13th 2019, At Marriot Downtown Philadelphia, was held the 11th Usher Syndrome Conference organized by…

Sunday July 21st, 2019

Shine a Light on Usher Syndrome

https://www.youtube.com/watch?v=Gf4650exeI0 Over the last couple of years the Usher Syndrome Society has been collecting  portraits and stories of people of…

Thursday July 18th, 2019

ProQR Doses First Patient in Phase 1/2 STELLAR Trial of QR-421a for Usher Syndrome Type 2

Original text here LEIDEN, Netherlands and CAMBRIDGE, Mass., March 11, 2019 (GLOBE NEWSWIRE) -- ProQR Therapeutics N.V. (Nasdaq:PRQR), a company dedicated to changing lives through the creation…

Friday March 22nd, 2019