retinite pigmentosa

I have a rare disease. Luck is blind, but me too

To understand how rare Usher Syndrome is, we try to compare some data. (Unfortunately, no data are verified and confirmed.

Thursday April 28th, 2011

How much does one with retinitis pigmentosa see ? What does he/she see?

But you, what you see? I’ve been asked many times. Probably they were curious. Who does not know the disease,…

Saturday March 5th, 2011