Writing an article about psychology in relation to disability, and in particular, to Usher syndrome is a challenge not to be underestimated. Read
Often when people hear about retinitis pigmentosa or Usher syndrome, they become sad, look down, they put a hand on your shoulder, and often say: “I’m sorry …” as if there was some grief to deal with; two of the psychotherapist I went, when I told them my night misadventures held a look, like when you see a dog without a leg, or a deadpigeon on the street, an abandoned kitten, something like that. Read
When I was about 23 I began to realize that soon I should put the driving license between the memories of the past. Read
In our Facebook page, which gradually increases its ‘Like’ we have recently opened a discussion in italian and one in english with the aim of collecting tips to survive with Usher Syndrome.
People who are affected, but also those who live and/or work with them must adapt certain behaviors to the needs of the patient. Read
I have not managed to meet him personally, but have followed his adventures, read his stories, I looked at his photos and clips. Read
In the article How much does who has retinitis pigmentosa see ? What does he/she see? one of our reader wrote a comment that deserves greater visibility. Read
Let’s say it, this time we were better. We Italians I mean.
In our language there is the word IPOVISIONE, which defines a state of visual impairment that is not comparable to blindness. Read
When I heard for the first time the word synesthesia, I never imagined it would be so deeply rooted in my life and my perception of things. Read
But you, what you see?
I’ve been asked many times. Probably they were curious. Who does not know the disease, but in any case who encounters a patient with retinitis pigmentosa is easily wondering what he sees, how he sees. Read