Psychological aspects related to Usher Syndrome. How low vision and hearing loss transform the personality

Writing an article about psychology in relation to disability, and in particular, to Usher syndrome is a challenge not to…

Saturday June 25th, 2011

When Usher Syndrome is a superpower. The considerations of a superhero with retinitis pigmentosa

Often when people hear about retinitis pigmentosa or Usher syndrome, they become sad, look down, they put a hand on…

Wednesday June 15th, 2011

Dating and Usher syndrome. Implications of visual and hearing impairment

When I was about 23 I began to realize that soon I should put the driving license between the memories…

Monday June 13th, 2011

Useful tips for those who live and work with a deaf person with retinitis pigmentosa

In our Facebook page, which gradually increases its ‘Like’ we have recently opened a discussion in italian and one in…

Sunday May 15th, 2011

Usher Syndrome no limits: Bill Barkeley knows how to do it, and you?

I have not managed to meet him personally, but have followed his adventures, read his stories, I looked at his…

Tuesday May 10th, 2011

How to survive the Usher Syndrome. Ruggero has five suggestions

In the article How much does who has retinitis pigmentosa see ? What does he/she see? one of our reader…

Friday May 6th, 2011

I’m not blind. I am VISUALLY IMPAIRED. How long will I still see for?

  Let’s say it, this time we were better. We Italians I mean. In our language there is the word IPOVISIONE, which defines a state of visual impairment that is not comparable to blindness.

Tuesday April 26th, 2011

Synesthesia, a word for many senses

When I heard for the first time the word synesthesia, I never imagined it would be so deeply rooted in…

Thursday April 21st, 2011

How much does one with retinitis pigmentosa see ? What does he/she see?

But you, what you see? I’ve been asked many times. Probably they were curious. Who does not know the disease,…

Saturday March 5th, 2011