malattia rara

Who cares about the Syndrome!

I tried to find statistics that quantify how many people are suffering from a syndrome. Anyone. I found some data…

Tuesday October 11th, 2011

I have a rare disease. Luck is blind, but me too

To understand how rare Usher Syndrome is, we try to compare some data. (Unfortunately, no data are verified and confirmed.

Thursday April 28th, 2011