In our Facebook page, which gradually increases its ‘Like’ we have recently opened a discussion in italian and one in english with the aim of collecting tips to survive with Usher Syndrome.
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I have not managed to meet him personally, but have followed his adventures, read his stories, I looked at his photos and clips.
Read In the article How much does who has retinitis pigmentosa see ? What does he/she see? one of our reader wrote a comment that deserves greater visibility.
Read In a previous article we discussed the difference between being blind and being visually impaired. For the ‘lucky‘ people with Usher Syndrome the problem are double.
Read 28 April 2011
I have a rare disease. Luck is blind, but me too
To understand how rare Usher Syndrome is, we try to compare some data.
(Unfortunately, no data are verified and confirmed.
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Let’s say it, this time we were better. We Italians I mean.
In our language there is the word IPOVISIONE, which defines a state of visual impairment that is not comparable to blindness.
Read 21 April 2011
Synesthesia, a word for many senses
When I heard for the first time the word synesthesia, I never imagined it would be so deeply rooted in my life and my perception of things.
Read Helen Adams Keller was an American writer, activist and teacher, deaf-blind since the age of 19 months. Her story and that of her teacher Anne Sullivan, it is surprising and unique, for will, determination and strength, so as to have inspired several movies (Deliverance, The Unconquered, Anna dei miracoli, The Miracle Worker).
Read I recently described a photo taken by a photographer who is blind, with the aim of providing information readable by a screen redader so that other blind people can ‘see’ the picture and eventually the photographer may have feedback on what is imprinted on her shots and find out what they communicate to the observer.
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