Being visually impaired, in all the possible variants, it is not easy at any age.
Retinitis pigmentosa is an unpredictable disease: it is unpredictable when and how intensively it will manifest, it does not matter if you have just learned to walk or if suddenly you find yourself having to change your world, having to rearrange your professional life and relationships. Read
Talking, talking, talking.
There is the need to talk.
There is the need to share the phases and the moments of this degenerative disease, so maybe it feels less heavy. Read
I have a passion for maps and globes. Maybe because I love to travel, or because they help me to dream of other possible lives. Read
We met on the internet, through a series of contacts. Only after writing each other a few emails we found out we both lived in Berlin. Read
When it comes to finding information in general, most people use the internet. Of course, it also applies to search for news, treatments, people associated with the diseases, in this case of Usher syndrome.
If, as explained in a previous article, internet users use Facebook for an exchange of information and a quick confrontatio, we wish to point out the best web pages for those who want to integrate into the global Usher community, more from a virtually human point of view, rather than the purely scientific and medical ones.
The web pages listed here, in fact, are blogs, poems and stories of people who have to do with Usher Syndrome personally
The research was done obviously through the web, but fails to overcome the language barriers of Noisyvision editors who can not find pages in languages other than English, Italian, Spanish.
Who knows if out there in the WWW there is some good story in Turkish, Russian, Greek.We’d Read
The Emotiv EPOC is a high resolution, neuro-signal acquisition and processing wireless neuroheadset. It uses a set of sensors to tune into electric signals produced by the brain to detect player thoughts, feelings and expressions and connects wirelessly to most PCs. Read