Articles

ProQR Announces Positive Results from Clinical Trial of QR-421a in Usher Syndrome

Orignal Post here ProQR Announces Positive Results from Clinical Trial of QR-421a in Usher Syndrome and Plans to Start Pivotal…

Thursday March 25th, 2021

Loss of sight is a grief

Loss of sight is a grief for those who experience it. We must then be able to escape from the…

Thursday March 25th, 2021

Technologies for the autonomy of the blind: when the disable person becomes homo technologicus

On his website and personal blog, Giuseppe di Grande made an interesting roundup of the "bullshit", as he defines it,…

Monday March 15th, 2021

Music is invisible to the eye

February is the low vision awareness month. We wrote about this in this article. This year we want to celebrate…

Thursday February 4th, 2021

December 3rd: International Day of Persons with Disabilities

The annual observance of the International Day of Disabled Persons was proclaimed in 1992 by United Nations General Assembly resolution 47/3.…

Tuesday December 1st, 2020

When touching is forbidden

When I was 18 years I was diagnosed with Usher Syndrome and it took me another eighteen years to understand…

Thursday March 19th, 2020

Freedom is within us, a partially sighted says.

Yesterday I decided to try not to read news, articles, numbers. It is difficult because the situation evolves rapidly and…

Monday March 16th, 2020

Isolated because excluded: when we are the virus.

The situation we are experiencing in these days following the stringent restrictions to limit the spread of the coronavirus, leads…

Wednesday March 11th, 2020

I am rare. Actually unique. Rare Disease Day

"When I found out I was stunned. It was clear that it was #rare but I didn't think so rare.…

Saturday February 29th, 2020