Dominique Sturz (AT), Melissa Chaikof (US), Carol Brill (IRL), Dario Sorgato (IT)
We hope that you are all fine and healthy despite the COVID-19 pandemic. We are happy to issue our Spring Newsletter providing you with an update of USH related events scheduled for this year and with news relevant during the COVID-19 pandemic.
RIWC 2020 – 21st Retina International World Congress scheduled for 4-6 June 2020 in Reykjavík, Iceland, is postponed to 2022
Retina International World Congress brings together some of the world’s foremost retinal scientists and clinicians along with the global leaders in patient advocacy and peer support. The Nordic Ophthalmology Congress is also postponed to 2022 at the same venue. During the events we are planning to hold an Usher Syndrome satellite meeting. https://www.riwc2020.is/#covid
International Usher info Symposium scheduled for 26-27 June 2020 in Paris, France, is postponed
Details will be announced as soon as possible, we will keep you updated.
Scientific & Patient Sympsoium organised by Fondation Pour l’Audition and Fondation Voir et Entendre in the framework of the LIGHT4DEAF project dedicated to Usher syndrome. http://pro.usherinfo.fr/2020-international-usher-info-scientific-symposium/
USH Connections Conference – Usher Syndrome Coalition 10-11 July 2020 in Austin. TX, United States, online
This year’s USH2020 Connections Conference will be a virtual event, the in person event is postponed to 9-10 June 2021 at the same venue. https://www.usher-syndrome.org/ush2020.html
Relevant Rare (Eye) Disease related events
ERN Eye General Annual Meeting scheduled for 18-19 March 2020 in Vilnius, Lithuania, is postponed to 14-16 October 2020.
The General Annual Meeting of the European Reference Network for Rare Eye diseases WRN Eye will take place either as a face-to-face meeting in Vilnius or as an online meeting. News about European research projects and projects done in collaboration with international partners, as well as an update about new full ERN Eye members and affiliated partners should be available by then. We will keep you updated.
European Conference on Rare Diseases 15-16 May 2020 (planned to be held in Stockholm) now available in online format
ECRD is the globe’s largest, patient-led rare disease event with 1300+ attendees and 100+ speaker. For the first time 100% online and with reduced registration rates it is an unrivalled opportunity to learn, network and exchange. Plenary sessions will be broadcasted live in English, French and German. Live captions and sign language in English are announced to be available.
Precautions for people living with vision and/or hearing loss due to Usher Syndrome during the COVID-19 pandemic
BEFORE and AFTER each physical contact/interaction/communication:
For people not living in the same household like personal assistants or caretakers and interpreters (sign language, tactile language, finger alphabet)
BEFORE each contact/interaction all should:
AFTER each contact/interaction:
In public areas:
For medical consultations:
In case of hospitalization and/or treatment due to COVID-19:
ERN Eye has put together some useful information (patients’ FAQs) here:
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We hope you enjoyed our newsletter and we will come back to you soon. Stay safe!
You can download our Spring Newsletter on gene therapy for Usher Syndrome here: http://www.retina-international.org/what-we-do/ri-ush-sig-newsletter/
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